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The IPEX Foundation's mission is to improve the treatment, quality of life, and long-term outlook for children and adults living with IPEX syndrome through research, support, education, and advocacy to families and patients.

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  • We are a 501(3)(c) non-profit run by patients & families with IPEX. This is where your donations go:

  • Direct financial support to patients

    Cost of treatments, travel to clinical trials

  • Research grants

    Increase the speed and quantity of trials targeting IPEX and related syndromes

  • Increase global IPEX awareness

    Reduce misdiagnoses and get patients the care they need

Thank you for your support and generosity!

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