How to help

The IPEX Foundation's mission is to improve the treatment, quality of life, and long-term outlook for children and adults living with IPEX Syndrome through research, support, education, and advocacy to families and patients.

Step 1. Consider donating

  • We are a 501(3)(c) non-profit run by patients & families with IPEX. This is where your donations go:

  • Direct financial support to patients

    Cost of treatments, travel to clinical trials

  • Research grants

    Increase the speed and quantity of trials targeting IPEX and related syndromes

  • Increase global IPEX awareness

    Reduce misdiagnoses and get patients the care they need

Thank you for your support and generosity!

Donate via PayPalDonate via Venmo

Step 3. Help in other ways

  • Hold an event

    If you are interested in holding an event to raise funds and increase awareness, please let us know!

    Contact us 

  • Register with your national bone marrow registry

    Bone marrow transplants are still the best option for IPEX, and donors are severely lacking

    Get swabbed 

  • Tell your friends

    Get them swabbed for the bone marrow registry, increase awareness of the signs of IPEX

    Know the signs 

We are grateful for your support, thank you!

Patient or parent? We're here to help

Patient resources

Medical professional treating IPEX?

Resources for HCPs