IPEX Foundation - Supporting patients & families with IPEX – IPEX Syndrome Foundation

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Supporting patients & families with IPEX Syndrome

Know the Signs:
Type 1 diabetes ⸱ Persistent diarrhea ⸱ Skin rashes ⸱ Kidney dysfunction ⸱ Hemolytic anemia
What is IPEX?
Patient or parent? We're here to help
Resources for patients & families
Medical professional treating IPEX?
Resources for healthcare providers
Ready to help cure IPEX?
How to help patients with IPEX

Clinical trials & news

Updates on trials and treatments for patients with IPEX

IPEX Specialist Network

Find a doctor with experience caring for IPEX near you

IPEX specialists

Latest news

Jan 2026

'Hearts for Jax' brings IPEX cure one step closer

Thank you to the wonderful people of Zelienople, PA for your support as we raise $2M to fund the cure for IPEX

What is IPEX?

Learn more about this unique disease at the forefront of immune research

Patient stories

Read the stories of real patients and their loved ones affected by IPEX