About us
The IPEX Foundation's mission is to improve the treatment, quality of life, and long-term outlook for children and adults living with IPEX syndrome through research, support, education, and advocacy to families and patients.
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We are a 501(3)(c) non-profit run by patients & families with IPEX. This is where your donations go:
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Direct financial support to patients
Cost of treatments, travel to clinical trials
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Research grants
Increase the speed and quantity of trials targeting IPEX and related syndromes
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Increase global IPEX awareness
Reduce misdiagnoses and get patients the care they need
Board members
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Nicole D'Ambrosio
Foundation President, IPEX parent
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Samantha Wallace
Vice President, IPEX parent
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Brandon Sims
Secretary, IPEX parent
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Becca Godard
Treasurer, IPEX parent
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Taylor Lookofsky
Board member, IPEX patient
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Alicia Kalojiannis
Board member, IPEX-like parent
Medical Advisory Board
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Dr. Rosa Bacchetta, M.D.
ProfileProfessor (Research) of Pediatrics (Stem Cell Transplantation), Stanford Children's Hospital
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Troy Torgerson, M.D.
ProfileDirector, Experimental Immunology, Allen Institute for Immunology, Seattle Children's Research Institute
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Jodie Ouahed, M.D.
ProfilePediatric Gastroenterologist, Inflammatory Bowel Disease Center, Boston Children's Hospital