Healthcare providers

Thank you for taking care of our brave patients with IPEX.

Clinical care guidelines are being developed. In the meantime, please contact our Medical Advisory Board for professional support, and consider joining our IPEX Specialist Network.

Medical Advisory Board

  • Dr. Rosa Bacchetta, M.D.

    Professor (Research) of Pediatrics (Stem Cell Transplantation), Stanford Children's Hospital

    Contact 

  • Dr. Troy Torgerson, M.D.

    Director, Experimental Immunology, Allen Institute for Immunology, Seattle Children's Research Institute

    Contact 

  • Dr. Jodie Ouahed, M.D.

    Pediatric Gastroenterologist, Inflammatory Bowel Disease Center, Boston Children's Hospital

    Contact 

Clinical trials & news

Updates on trials and treatments for patients with IPEX

Towards a cure

IPEX Specialist Network

Global list of healthcare professionals with experience caring for IPEX

IPEX specialists

What is IPEX?

Learn more about this unique disease at the forefront of immune research

Know the signs

Patient stories

Read the stories of real patients and their loved ones affected by IPEX

Be inspired